Event Details

2017 GFPD Family and Scientific Conference

07/14/2017 03:00 PM

@ Embassy Suites at the Chevy Chase Pavilion
4300 Military Road, NW
WashingtonDC 


2017 GFPD Family and Scientific Conference

The GFPD hosts biennial Family and Scientific Conferences to bring COPING and HOPING together in one place. Our 2017 Conference will be held at the Embassy Suites Chevy Chase Pavilion in Washington, DC., July 14-17, 2017.

The 2017 Family and Scientific Conference will bring together patient families, practicing physicians, researchers, and organizational supporters. Utilizing large and small presentations, break out groups, panel discussions, focus groups, and vendor interactions, we will:

• Further natural history research projects by helping families participate in collaborative, on-site research projects with physicians and researchers
• Implement a focus group on caregiver quality of life designed to support a future publication
• Increase stress management skills in siblings and parents through art therapy sessions
• Identify options for enhancing the education of deaf - blind children
• Increase parent and caregiver knowledge of new research and treatment options

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